When a person is diagnosed with cancer in the UK information about them is automatically included in the national cancer registry.
A small number of people also have their information included in the registry because they are diagnosed with a certain condition that can lead to cancer or their doctor suspects they may have cancer and sends them for further tests.
This process currently happens automatically, with information coming directly from hospitals and healthcare professionals.
The cancer registry is a list of people diagnosed with cancer, collected directly from hospitals and healthcare professionals. It is a database of information about cancer patients.
Most data is collected automatically from hospitals, some data is obtained through surveys or linked to NHS records.
Data collected includes personal details such as your
- date of birth
- the type of cancer
- cancer diagnosis
- cancer treatment
- cancer outcomes
You can choose not to have your information included in the registry if you prefer; by contacting the cancer registry.
You can opt out of the cancer registry you will need to contact the National Cancer Registration and Analysis Service (NCRAS), which will require you to contact them by post or email.
Requests to opt out of cancer registration should be made in writing to the address below:
National Cancer Registration and Analysis Service
Public Health England
Or you can email firstname.lastname@example.org.
Please note: information sent to this email address will not be encrypted.