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Hypermobility Syndromes

Joint hypermobility is a term used to describe the capability of joints to move beyond normal limits. It can exist by itself or as part of a more complex diagnosis.

Being hypermobile does not have to be part of a syndrome; 3.4% of the population have generalised joint hypermobility. Ehlers Danlos Syndrome (EDS) are heritable Connective Tissue Disorders affecting the quality of collagen in every part of the body.

Hypermobility syndromes can have associated characteristics such as poor posture, poor balance, clumsiness, mechanical pain (pain with certain movements, activities or positions) and sometimes chronic or persistent pain.

Please see the links below for more information on available support groups and charities relevant to this condition.

What Can I Do To Help Myself?

Many rheumatological conditions are classed as long- term conditions meaning that either you will live with them for many years or in some cases indefinitely.

 While medical science continually works hard through research to find improvements to medical treatment for these conditions, we know that there are many ways in which you can help yourself.

Have a look below at some information leaflets through the links to help with your self-management.

Coping with Flare Ups

Coping with Flare Ups - PDF

Getting A Good Night’s Sleep

Getting A Good Night’s Sleep - PDF

Relaxation Techniques

Relaxation Techniques - PDF

Mindfulness video

Tips For Stress Management

Tips For Stress Management - PDF

Pacing And Setting Baselines

Pacing And Setting Baselines - PDF

Goal Setting and Action Planning

Goal Setting and Action Planning - PDF

Managing A Set-Back

Managing A Set-Back - PDF

When to seek advice

If you have severe pain affecting your sleep and daily activities, if you have had a serious injury or you have symptoms that have not improved with self-management, you should contact your GP practice. If you have a red, hot swollen joint please ring 111